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Naming Things

It’s been said, and I believe it to be true, that naming things gives you power over them. A recent post by Sara introduced me to a term I hadn’t heard before, Impostor Syndrome.  Reading about it, it...

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A Look Into A Different Chronic World

** Today’s post is a guest post from fellow Society for Participatory Medicine member and e-patient Alex Albin, who blogs at My Life in the Bush of Doctors .  She’s wondering about something all of us...

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Caregiving as an Invisible Health Condition

This week is National Invisible Illness Awareness Week, organized by Lisa Copen, founder of Rest Ministries.  ** There is a great article on CNN about Talking with Someone Who is Chronically Ill that...

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Health Camp KC – The Unconference

Wow, what a weekend!  There was a lot going on this weekend, I attended the Partnership With Patients conference on Saturday and the HealthCa.mp KC unconference on Sunday.  By the way, I am a terrible...

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Yes, Actions Do Have Consequences

A while back I met an individual, a member of the HCP community, who told me that they read my blog. I still feel a little awkward when someone tells me that, so I usually just say “Thanks!”. The...

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On Feeling Centered

Ever since the Partnership With Patients Conference and the Health Ca.mp Unconference a few weeks ago, I’ve really been feeling better about things in general.  Morpheus even noticed at our following...

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I’m Not Broken

I’m not broken. I never was, I simply did not have the tools I needed to realize that. There are things, demons that I must still face.  But with hard work and guidance, I know I can face them. I’m not...

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Hey EHR Guys, Data is Data

Recently, during a discussion on EHR (Electronic Health Record) systems on the Society For Participatory Medicine’s mailing list, fellow Society member Casey Quinlan wrote: We are so not even near...

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And Then It Became So Hard

** You’ll want to read That Fateful Saturday and It Would Be So Easy first, otherwise this might not make much sense So I Chose. I was still terribly depressed, but no longer at rock bottom.  I was...

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Loss Of An Old Friend

** taking a slight detour from my account of dealing with my depression to talk a little about my mom Those who have read my blog for a while will know that I am a live-in caregiver for my mother.  Two...

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Finding Morpheus

** those following along the last few months know who Morpheus refers to… for those who don’t it is how I refer to my psychologist in my blog posts describing my experiences in talk therapy One of the...

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Relaunched! mostly…

After more than two years of being kindly hosted over at DiabetesBlogs.com, an offering of DiabetesDaily.com, I have moved to a new hosting service.  David Edleman over at Diabetes Daily offers free...

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What I’ve Learned So Far

It’s been a while since I posted, but I wanted to finish up my discussion of the last few years with a summary of what I’ve learned (sometimes I think stumbled into is a better description). Learning...

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The Law of Unintended Consequences

As a firm believer in the Law of Unintended Consequences (LoUC), it immediately came to mind when I read a post by Dan Diamond over at the Health Care Blog, About Time? Smokers Face Tough New Rules...

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Morpheus Speaks

** Today, I am happy to introduce Dr. Ann Becker Shutte, better known as Morpheus.  Take it away, Ann! Hi all–nice to virtually meet you. This is a first for me–sharing a guest post on a former...

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Your Child is Going to Die and We Can’t Do Anything About It

“Your child has Type 1 diabetes” Those are six words that no parent wants to hear.  Those six words were a death sentence 90 years ago before the advent of insulin. Today, most of the developed world...

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National Eating Disorders Awareness Week – I’m One of the Disorderly

I have body image issues. My rather large gut shames me almost everyday. It dictates how I dress, what I eat, makes me want to stay in and isolate myself so not to feel embarrassed. After going through...

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I Can’t Find The Word For This Type Of ‘-ism’ Or ‘-ist’

And it’s not from a lack of trying, the word simply doesn’t exist. Maybe there’s been no need for it, a word to describe a concept that is imbedded in societies around the world. Maybe it simply hasn’t...

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I Have To Stop Giving A Sh*t

I’ve been pretty absent recently dealing with a big chunk of burnout. Not diabetes burnout, but caregiver burnout. While I really have to do very little for mom, there are a lot of things that roll...

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Cause & Effect

Last time I described how I was trying to change the way I perceived stress and it’s effect on me, how I was trying to separate the two. In effect, I described the separation of cause and effect. Well,...

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